About this store
This Awareness store is in memory of our daughter; Annabella Hope. She left a lasting impression on our hearts and souls as well as touching the lives of so many all across the world. She is loved and missed dearly and will never be forgotten. When Annabella left this world we as her parents made her a promise that we are bound to keep. Our promise was to keep her memory living on while; helping the lives of other families and babies affected as we were. Our daughter; Annabella Hope was born on January 24, 2011. Annabella was diagnosed at 17 weeks gestation with 2 rare conditions; Trisomy 18 (Edward's Syndrome) and a Congenital Diaphragmatic Hernia. Little information was given to us and all of our doctors recommended termination. Each of these conditions are caused by unknown reasons and offer very little hope and support for families affected by them. Trisomy 18 is a genetic anomaly that takes place during fertilization on the 18th chromosome. Thus resulting in an extra chromosome on one of the 23 once normal chromosome pairs. In approximately one in 3,000 pregnancies. 50-95% of those diagnosed with Trisomy 18 in utero do not survive to birth. The most common effects of Trisomy 18 are death, heart defects, mental retardation and developmental delays. A CDH occurs in one in 3000 live births during development of the baby when the absence or deficiency of the diaphragm takes place; therefore causing the stomach and intestines to rise into the chest cavity causing severe respiratory distress; pulmonary hypoplasia, lung growth underdevelopment, damage to the heart, liver, kidneys, and intestines. CDH can be known to occur in 1% of newborns diagnosed with Trisomy 18. Families, including us; expecting a child with this condition are given little hope and told to go home and make uninformed decisions because our baby is going to die. This being because "Trisomy 18" has been labeled as; "incompatible with life". Medical experts try to initiate DNR's in our case because they say that CDH is non-treatable for a baby born with Trisomy 18. However, after finding hundreds of families around the world faced with the same diagnoses; we found a world full of loving families filled with hope and most of all; many of their children still thriving. We found families affected by both Trisomy 18 and CDH along with wonderful families affected by one anomaly and not the other. Our decision was to give our daughter life even if it meant that we would be challenged on a daily basis with her care and her needs. Sadly our Annabella passed away on April 9, 2011 just 2 days shy of coming home. Our daughter lived a beautiful 76 days filled with nothing but unconditional love and compassion. We can only hope that other families can get the time with their child that they so deserve. We can only hope that other families will be able to achieve the life sustaining treatments and options available to their child without having to exercise their constitutional rights. If there is one goal and ambition that our daughter has left us with; it is to continue to carry hope within our hearts and to help increase awareness of Trisomy 18 and CDH disorders. Being that there is little known of the conditions as to what causes them or why they happen; research and awareness have become a very important mission for us to follow through on. We strive to help as many families as possible in hopes to finding out the answers and treatment options available for each individual child on an as needed basis. Our goal is to help in finding these answers, changing the labels, and to have the opportunity to watch other children like our daughter recieve the treatment and rights that our daughter didn't recieve. We want the opportunity to allow our child to live through children just like her. Research is not possible without federal grants and aide. Research is not possible without the proper funding needed to provide important information and changes that can hopefully be made available to our children one day. Being this. We have decided to raise funds to help with this mission and to make it happen! After careful consideration we have decided that a portion of proceeds raised through selling our products will be distributed between CHERUBS. CHERUBS is a 501(c)3 non-profit organization dedicated to seeking out research and development for babies, children, and adolescents diagnosed with a CDH to find the cause, prevention and best treatments for CDH. http://www.cherubs-cdh.org The remainder of the proceeds raised from selling our products to raise awareness will be distributed to theTrisomy 18 Bridge of Hope Foundation. Their mission is to help parents and the medical community affected by Trisomy 18 and to educate the public about Trisomy 18 by directing families to all information and treatment options available to their children. In their efforts they provide free action kits for new parents; awareness programs, updated information on Trisomy 18, articles; and funding research to promote both short-term and long-term change for our Trisomy 18 community. http://www.trisomy18bridgeofhope.org One true lesson we learned with our daughter was that life is not just an opportunity if you do not utilize it; life is a playground waiting for many adventures to take place. If we don't get out there and run around and live our lives to the fullest; we will dwindle away to nothing and have no lasting impression to leave here in this world as our daughter has done! We want to be remembered as the "parents that never gave up hope". Thank you for visiting and learning about something as important as this! Please support us to help us reach our goals.