The ME/CFS Worldwide Patient Alliance formed in 2010 as a result of an increasing call for sufferers to engage with the process of advocacy to articulate their needs. For too long, the public and patients have been left out of the debate, yet they are the main ones impacted. One of the main aims of the MCWPA is to enable sufferers of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome to make public statements concerning inadequacies in government agencies, research cooperation and overall understanding of their illness.
By using print and video advertisements, we hope to shift the discussion to improving conditions for patients. Through the support of P.A.N.D.O.R.A., Inc., a 501c3, a Facebook Cause page was set up to announce the effort and start fund raising. This campaign is patient-driven, with a group of advisers with expertise filtering through ideas then presenting top selections for a patient vote.
MC/CFS Worldwide Patient Alliance invites patient organizations to do their own fund raising for the campaign and add their signature to the advertisements.
A 25% markup on merchandise has been added as a donation to the MCWPA.